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Genetic Data and the Law
A Critical Perspective on Privacy Protection

$94.00 ( ) USD

Part of Cambridge Bioethics and Law

  • Date Published: April 2012
  • availability: This ISBN is for an eBook version which is distributed on our behalf by a third party.
  • format: Adobe eBook Reader
  • isbn: 9781139334969

$ 94.00 USD ( )
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About the Authors
  • Research using genetic data raises various concerns relating to privacy protection. Many of these concerns can also apply to research that uses other personal data, but not with the same implications for failure. The norms of exclusivity associated with a private life go beyond the current legal concept of personal data to include genetic data that relates to multiple identifiable individuals simultaneously and anonymous data that could be associated with any number of individuals in different, but reasonably foreseeable, contexts. It is the possibilities and implications of association that are significant, and these possibilities can only be assessed if one considers the interpretive potential of data. They are missed if one fixates upon its interpretive pedigree or misunderstands the meaning and significance of identification. This book demonstrates how the public interest in research using genetic data might be reconciled with the public interest in proper privacy protection.

    • Describes a concept of privacy that ensures appropriate research access to genetic data without sacrificing proper privacy protection
    • Highlights the inability of the legal concept of personal data to protect informational privacy and makes clear the importance of fluid interpretive frameworks to the relationship between data and information
    • Provides recommendations for reform that suggest how a broader range of privacy interests might be taken into account within a regulatory environment
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    Product details

    • Date Published: April 2012
    • format: Adobe eBook Reader
    • isbn: 9781139334969
    • availability: This ISBN is for an eBook version which is distributed on our behalf by a third party.
  • Table of Contents

    1. Introduction
    2. Privacy
    3. Genetic data
    4. The law
    5. Data in common
    6. Anonymity
    7. Human tissue
    8. Genetic discrimination
    9. Potential, promise and possibility.

  • Author

    Mark Taylor, University of Sheffield
    Mark Taylor is a lecturer at the University of Sheffield and Deputy Director of the Sheffield Institute for Biotechnological Law and Ethics. His primary research interest concerns the legal and ethical issues raised by scientific developments in genetic testing and screening technologies.

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