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Human Germline Genome Modification and the Right to Science

Human Germline Genome Modification and the Right to Science
A Comparative Study of National Laws and Policies

Andrea Boggio, Cesare P. R. Romano, Jessica Almqvist, Erika Kleiderman, Kerry Lynn Macintosh, María de Jesús Medina Arellano, James Lawford Davies, Timo Faltus, Guido Pennings, Santa Slokenberga, Heidi Carmen Howard, Britta van Beers, Charlotte de Kluiver, Rick Maas, Ludovica Poli, Iñigo de Miguel Beriain, Carlos María Romeo Casabona, Alessandro Blasimme, Dorothée Caminiti, Effy Vayena, Tetsuya Ishii, Lingqiao Song, Rosario Isasi, Hannah Kim, Yann Joly, Calvin W. L. Ho, Dianne Nicol, Vardit Ravitsky, Gali Ben-Or
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  • Publication planned for: April 2020
  • availability: Not yet published - available from April 2020
  • format: Hardback
  • isbn: 9781108499873

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About the Authors
  • The advent of the CRISPR/Cas9 class of genome editing tools is transforming not just science and medicine, but also law. When the genome of germline cells is modified, the modifications could be inherited, with far-reaching effects in time and scale. Legal systems are struggling with keeping up with the CRISPR revolution and both lawyers and scientists are often confused about existing regulations. This book contains an analysis of the national regulatory framework in eighteen selected countries. Written by national legal experts, it includes all major players in bioengineering, plus an analysis of the emerging international standards and a discussion of how international human rights standards should inform national and international regulatory frameworks. The authors propose a set of principles for the regulation of germline engineering, based on international human rights law, that can be the foundation for regulating heritable gene editing both at the level of countries as well as globally.

    • Serves as a reference manual for those interested in knowing how human germline genome editing is regulated
    • Proposes a new framework for the development of governance of human germline genome editing
    • Reframes the debate on germline engineering at a time when a regulatory framework is urgently needed
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    Product details

    • Publication planned for: April 2020
    • format: Hardback
    • isbn: 9781108499873
    • dimensions: 228 x 152 mm
    • contains: 6 b/w illus. 8 tables
    • availability: Not yet published - available from April 2020
  • Table of Contents

    1. Introduction Andrea Boggio,Cesare P. R. Romano and Jessica Almqvist
    2. The governance of human (germline) genome modification at the international and transnational level
    Part I. North America:
    3. The regulation of human germline genome modification in Canada Erika Kleiderman
    4. The regulation of human germline genome modification in the United States Kerry Lynn Macintosh
    5. The regulation of human germline genome modification in Mexico María de Jesús Medina Arellano
    Part II. Europe:
    6. The regulation of human germline genome modification in Europe Jessica Almqvist and Cesare P. R. Romano
    7. The regulation of human germline genome modification in the United Kingdom James Lawford Davies
    8. The regulation of human germline genome modification in Germany Timo Faltus
    9. The regulation of human germline genome modification in Belgium Guido Pennings
    10. The regulation of human germline genome modification in Sweden Santa Slokenberga and Heidi Carmen Howard
    11. The regulation of human germline genome modification in the Netherlands Britta van Beers, Charlotte de Kluiver and Rick Maas
    12. The regulation of human germline genome modification in Italy Ludovica Poli
    13. The regulation of human germline genome modification in Spain Iñigo de Miguel Beriain and Carlos María Romeo Casabona
    14. The regulation of human germline genome modification in France Alessandro Blasimme, Dorothée Caminiti and Effy Vayena
    15. The regulation of human germline genome modification in Switzerland Alessandro Blasimme, Dorothée Caminiti and Effy Vayena
    Part III. Asia:
    16. The regulation of human germline genome modification in Japan Tetsuya Ishii
    17. The regulation of human germline genome modification in The People's Republic of China Lingqiao Song and Rosario Isasi
    18. The regulation of human germline genome modification in The Republic of Korea Hannah Kim and Yann Joly
    19. The regulation of human germline genome modification in Singapore Calvin W. L. Ho
    Part IV. Other OECD Countries:
    20. The regulation of human germline genome modification in Australia Dianne Nicol
    21. The regulation of human germline genome modification in Israel Vardit Ravitsky and Gali Ben-Or
    22. Towards a human rights framework for the regulation of human germline genome modification Andrea Boggio, Cesare P. R. Romano and Jessica Almqvist.

  • Editors

    Andrea Boggio, Bryant University, Rhode Island
    Andrea Boggio is Professor of Legal Studies at Bryant University, Rhode Island. He holds a J.S.D. from Stanford University Law School.

    Cesare P. R. Romano, Loyola Marymount University, California
    Cesare P. R. Romano is Professor of Law and W. Joseph Ford Fellow, at Loyola Law School Los Angeles, Loyola Marymount University, California. He holds an LL.M. from New York University Law School and a Ph.D. from the Graduate Institute of International Studies of the University of Geneva.

    Jessica Almqvist, Universidad Autónoma de Madrid
    Jessica Almqvist is Associate Professor in Public International Law at Universidad Autónoma de Madrid and Senior Research Fellow at the Elcano Royal Institute. She holds a Ph.D. in law from the European University Institute, Florence and a Diploma in graduate studies of political science from University of California, Berkeley.

    Contributors

    Andrea Boggio, Cesare P. R. Romano, Jessica Almqvist, Erika Kleiderman, Kerry Lynn Macintosh, María de Jesús Medina Arellano, James Lawford Davies, Timo Faltus, Guido Pennings, Santa Slokenberga, Heidi Carmen Howard, Britta van Beers, Charlotte de Kluiver, Rick Maas, Ludovica Poli, Iñigo de Miguel Beriain, Carlos María Romeo Casabona, Alessandro Blasimme, Dorothée Caminiti, Effy Vayena, Tetsuya Ishii, Lingqiao Song, Rosario Isasi, Hannah Kim, Yann Joly, Calvin W. L. Ho, Dianne Nicol, Vardit Ravitsky, Gali Ben-Or

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