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Case Studies in Neuropalliative Care

Part of Case Studies in Neurology

Daniel K. Partain, Jacob J. Strand, William P. Cheshire, Jr, Paul Glare, Sue E. Morris, Priscilla H. Howick, Maisha T. Robinson, Shayna Rich, Jennifer E. Fugate, Lauren K. Ng, Breana L. Taylor, Claire J. Creutzfeldt, Neha M. Kramer, Benzi M. Kluger, Janis M. Miyasaki, Joel Phillips, Jessica Besbris, Imran Shariff, Kimberly Chow, Kathryn Nevel, Alan Carver, Kristen Chasteen, Tobias Walbert, Ugur Sener, Alva Roche-Green, Ludo J. Vanopdenbosch, David J. Oliver, Gabriele De Luca, Joseph J. Hutchinson, Aynharan Sinnarajah, A. Sebastian Lopez-Chiriboga
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  • Date Published: June 2018
  • availability: Available
  • format: Paperback
  • isbn: 9781108404914

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About the Authors
  • With the growth of neuropalliative care as a rapidly-emerging subspecialty in neurology, it is essential that clinicians develop core skills to offer high-quality, patient-centred care. This book captures the essence of palliative care in Neurology, highlighting abundant opportunities to incorporate key principles into patients' management plans. Through a pragmatic, case-based format with suggested references for readers to expand their knowledge on a range of topics, this guide explores didactic opportunities. From patients facing challenging end-of-life decisions, families struggling to determine the treatment intensities, to clinicians leading difficult conversations, these cases are straightforward and relatable. Demonstrating the breadth of palliative care opportunities occurring on the spectrum of neurologic disease, this essential toolkit supports clinicians at all levels, providing assistance for patients who have chronic, progressive, or terminal neurologic diseases. Compelling and thought-provoking, this guide highlights the many opportunities to ease suffering and to improve quality of life.

    • A powerful educational tool to address the information gaps in pain control and symptom alleviation
    • It is case-based to highlight the varied approaches to the palliative care of patients with neurologic disease
    • Focuses on the neurologic subspecialty to demonstrate the breadth of palliative care and the opportunities available throughout the spectrum of neurologic disease
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    Product details

    • Date Published: June 2018
    • format: Paperback
    • isbn: 9781108404914
    • length: 186 pages
    • dimensions: 246 x 189 x 10 mm
    • weight: 0.43kg
    • contains: 42 b/w illus.
    • availability: Available
  • Table of Contents

    List of contributors
    Section 1. Palliative Care Principles:
    1. The role of palliative medicine in neuropalliative care
    2. Common challenges in a palliative medicine consultation
    3. When is the right time to give up?
    4. A request for cognitive enhancement
    5. 'Doctor, how long does he have?'
    6. 'Will I walk again?' Prognostication in spinal cord compression
    7. Prolonged grief following the death of a spouse
    8. Mitigating bereavement risk following a sudden death
    9. 'I'm praying for a miracle'
    10. 'Should his devices be deactivated?'
    11. 'Is it time for hospice?'
    Section 2. Cerebrovascular Diseases:
    12. Temporary non-invasive ventilation in a do-not-intubate patient
    13. Stroke and end-stage heart failure
    14. Stroke and decompressive hemicraniectomy in a young patient
    15. Surrogate decision-making after a malignant MCA ischemic stroke
    16. A time-limited trial in a case of a basilar artery occlusion
    17. 'Mom never wanted a feeding tube'
    18. Painfully cold, numb, and weak: clinical characteristics and management of central post-stroke pain
    19. Shared decision-making for stroke patients
    Section 3. Neurodegenerative and Neuromuscular Diseases:
    20. Making a diagnosis with compassion in Parkinson's disease
    21. Caring for patients and families affected by advanced Parkinson's disease
    22. Cognitive decline in Parkinson disease
    23. Evolving goals of care as progressive supranuclear palsy progresses
    24. Psychosis and caregiver strain in Parkinson disease
    25. Constipation and Parkinson disease
    26. Keeping Mom home at the end of life
    27. 'I miss him already'
    28. The dynamic role of palliative medicine throughout the course of neuromuscular disease
    29. Considerations for non-invasive ventilation in neuromuscular disease
    30. Optimizing symptoms before a compassionate wean from the ventilator
    31. The case of a lost patch
    32. Dementia, delirium, and a distended bladder
    Section 4. Neuro-Oncology:
    33. 'I don't want to be a burden on my family'
    34. Palliative amputation for refractory pain
    35. Chemotherapy-induced peripheral neuropathy
    36. 'Two years may be too far away'
    37. Shifting the goals of care
    38. Management of seizures in patients with glioma from diagnosis through the end of life
    39. The burden of health care surrogacy in the absence of instruction
    40. 'But my brother should be treated'
    41. Taking flight at the end of life
    Section 5. Pediatric Neurology:
    42. Not another shunt revision
    43. Intrathecal baclofen for severe spasticity
    Section 6. Demyelinating Diseases and Autoimmune Neurology:
    44. Palliative care in multiple sclerosis: navigating chronic disease can be a difficult pill to swallow at a young age
    45. The perils of late advance care planning in multiple sclerosis
    46. Comparing and contrasting the approach to advance care planning in multiple sclerosis
    47. Comparing and contrasting the approach to advance care planning in multiple sclerosis
    48. Neuropsychological disturbances and fatigue in multiple sclerosis
    49. Pain and psychosocial symptoms in newly diagnosed neuromyelitis optica spectrum disorder (NMOSD)
    Index.

  • Editor

    Maisha T. Robinson, Mayo Clinic, Florida
    Maisha T. Robinson earned her undergraduate degree in Biology from Princeton University and her medical degree from Tufts University, Massachusetts. She completed neurology training at Mayo Clinic. Impacted by patients with chronic and terminal neurologic diseases, she pursued a palliative medicine fellowship at Memorial Sloan Kettering. She was awarded a postdoctoral fellowship in health services and health policy research through the Robert Wood Johnson Foundation at the University of California, Los Angeles, where she earned a master of science in health policy and management. She currently serves as the Medical Director of Palliative Medicine and she leads a Neuropalliative Care Program at the Mayo Clinic in Jacksonville.

    Contributors

    Daniel K. Partain, Jacob J. Strand, William P. Cheshire, Jr, Paul Glare, Sue E. Morris, Priscilla H. Howick, Maisha T. Robinson, Shayna Rich, Jennifer E. Fugate, Lauren K. Ng, Breana L. Taylor, Claire J. Creutzfeldt, Neha M. Kramer, Benzi M. Kluger, Janis M. Miyasaki, Joel Phillips, Jessica Besbris, Imran Shariff, Kimberly Chow, Kathryn Nevel, Alan Carver, Kristen Chasteen, Tobias Walbert, Ugur Sener, Alva Roche-Green, Ludo J. Vanopdenbosch, David J. Oliver, Gabriele De Luca, Joseph J. Hutchinson, Aynharan Sinnarajah, A. Sebastian Lopez-Chiriboga

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